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Board of Directors:
President:
Kimberly Kremeier - Missouri
Contact: [email protected]
Vice President:
Michelle May - Canada
Contact: [email protected]
Treasurer:
Anita Hutton - New York
Secretary:
Jeff Blake - West Virginia
Board Members
Christina Pate - Florida
Cory Motzkin - Arizona
Robert Winsor - Massachusetts
Within this site you will find generalized information: (noting that we are "not giving medical advice" and that this is our viewpoints and understandings of this syndrome), for parents - or those affected by Robinow Syndrome. Information is from our experience as parents to help support others. If you have a medical questions or concerns consult your physician.
Advisory Board -
Juliana Mazzeu
Professor of Genetics at University of Brasilia, Brazil. Graduated in Biology, Masters and PhD degrees in Genetics, both obtained through her studies on Robinow syndrome. Actively researching the clinical and genetic aspects of Robinow syndrome for the last 20 years.
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